Is getting really old!
I am ready to have my sweet girl home!
It is so hard to leave her at the hospital (on the other side of town) all alone in her room all night.
I know the nurses are good, but they aren't her family!
When I am there I miss Tommy and Kyla and when I am home I miss her!
She is doing great with her feedings though. She is up to 30 ml per feeding now and 40 ml tomorrow!
If she keeps this up... Than our lives can get back to normal and Tommy and Kyla can enjoy their new baby sister!
There is a light at the end of the tunnel!
4 comments:
Me again ... real quick ... I wanted to let you know that I have a friend that has a little boy with Down syndrome, as well as Hirschprung's Disease. They have been through a lot and I thought you might like to get some insight from her. If so, let me know and I'll put ya'll in touch! :)
Hi, I found your blog and FB through Heather Seal. Your little baby is adorable, especially that beautiful tiny hat with a flower! I have a little guy (my 4th child) who has Ds and he's such a light. He just turned 2 in Nov. Come visit us sometime... www.monicacrumley.blogspot.com I hope your little one comes home soon!
Your such a good mommy, Kathy. Keep it up. We all love you guys. :)
Just happened upon your blog and I have a son, age 10, with down syndrome. He spent 15 days in the NICU and had a VSD repair at 1 yr.
Prayers and best wishes for Macy! Stop by and visit us!
http://luvmypeanut.blogspot.com
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