It is common among people with Down Syndrome to have hearing problems. That is a large part of the reason why many of them have difficulty communicating well. If you have ever heard a deaf person speak, they don't pronunciate their words as well. If you can't hear the correct pronunciation, you have a harder time repeating it.
Well, somehow Macy got overlooked in the beginning and never got her initial hearing test. Then when she finally got in around 8 months old, they found she has fluid behind her ears (to her it sounded like she was under water) and therefor she needed tubes to drain the water. She got those tubes last January.
Since than she has had multiple hearing tests. At some of them they thought she would need hearing aids, then some of the tests would be better. I really think it is hard to get a good result with an awake baby who could care less that she was being tested and didn't really cooperate. But, the testing continued, and I was okay with that. She has always been a chatter box and she has always responded to her name and acted like she could hear us. so I was just going with what the doctors wanted with little concern.
Eventually we got in to the Opthomologist again and she was stunned with how much wax Macy had produced, which surprised me because I never see wax in her ears. I guess it is a really sticky type that has completely blocked her ear tubes. Thus the failed tests! Though, we still know she can hear and she is doing great at her speech therapy appts.
Still, tomorrow she gets a new set of ear tubes, and though I am not supper nervous, there are still risks with every surgery! I am hoping that everything runs smoothly and that her new tubes stay nice and open! Unlucky for us, we have to be at the hospital at 6 am. I guess that means less time to wait for her to be done tomorrow! I'll be glad when I get to go see her in recovery and hug her and love on her!!
Jane, My Hero
2 weeks ago
6 comments:
What a little doll. I think I got those as a little tyke too. My mom said around age 3 she realized I was trying to read lips. Wishing Macy the best, and lots of hugs and loves. xoxo
We will sending extra prayers Macy's way.
She's getting so big! Good luck tomorrow :)
Good Luck, I hope it goes well!! If it makes ya feel any better, (although I understand that the circumstances are alot different and every child is different), Sophia had ear after ear infection and had tubes put in her ears when she was 1. Let us know how it goes :)
good luck!!!
We are still trying to get a conclusive result on Russells hearing tests. He had tubes put in a year ago, but we have yet to get a hearing test with a solid result. We might have to try doing the sleep test....Hope things went well with Macy today :)
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