My desire for an easy, slower schedule for 2011 goes up in flames!
We met with Macy's surgeon yesterday. He is afraid that if she keeps getting enterocolitis that it will scare him into giving her an ileostomy. For those who don't know what that is... They cut a hole in your tummy (an ostomy) and they detatch the large and small intestine and than attach the small intestine to the hole in your tummy. At that point she poops out of that hole and so she will have to live with a bag attached to her tummy to catch her poop. :( So in his attempt to prevent this, he wants to now see her every other week instead of the old every two months.
After that appt we headed to the pediatrician. She was concerned as well and wants to see follow Macy closer. So she will now see Macy once per month. She also thinks Macy needs a dietitian and a GI doctor... so she is sending off those referrals. As well as that, she thinks Macy is developmentally behind due to her long trip plus hospital admission. So, she is sending a referral for a developmental aid to come and work with Macy in our home a few days a week.
All that on top of her current appts, school and therapy!
I'm just hoping I can keep up!
Jane, My Hero
2 weeks ago
9 comments:
Developmental aid is a plus! But I am sorry that you have so many appointments. It is so wearing and makes it hard to have "normal" life or schedule of any kind. She'll catch up in no time, I'm sure! Prayers are coming your way from the Ewerts.
this is exactly how i feel right now just overwhelmed with appts like life got turned upside down. Although I feel soo much for you having to be at the hospital- all i want to do is be home where it feels safe- lots of prayers your way. you truly inspire me
YOU WILL BE ABLE TO KEEP UP because you are amazing and you will be blessed! I am so sorry that you are going through this! Poor little Macy! We will keep you in our prayers!
Take a deep breath and one day at a time. Somehow it will all fall into place and you will be able to get it all done.
Prayers for you and your entire family!
Mom's always make it work for our children. We will keep Macy in our prayers
You can do it Kathy. You are truly an inspiring woman. I know you will be blessed for the great job you are doing with your children.
You poor thing! That sounds like no fun at all. Hang in there!
you can keep up!!! I know you can!
what can I say You are awesome. happy birthday. I hope it was great, you have such a great outlook on life and those pics are beautiful.
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